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Patient-reported outcomes: A 5-year long study reveals previously unreported therapeutic, demographic, socio-economic, and other correlations in...

Valle Y., Korobko I., Sigova J., Borodina M., Lomonosov K. M., França K., Lotti T.
Dermatologic Therapy
Vol.31, Issue5, Num.e12620
Опубликовано: 2018
Тип ресурса: Статья

DOI:10.1111/dth.12620

Аннотация:
Vitiligo is a non-lethal, non-communicable, immune-mediated, and generally progressive skin disease, with poorly understood etiopathogenesis and weak evidence base. The aim of the study is to contribute to the scant research on the patient-reported outcomes in vitiligo, and to examine the presence of associations between various inputs for possible use in clinical practice. The study was designed as a web-based questionnaire with 40 inputs across seven dimensions. The questions include demographics, skin type, eye and natural hair color, age of respondent and age of onset, possible triggers, disease extent, localization, progression and activity, the efficacy of most common treatment modalities, medication side-effects, heredity and diseases among parents, and out-of-pocket expenses for treatments to date. The analysis presented with this work contributes to the discussion about the relation between therapies, socio-economic factors, and treatment outcomes in vitiligo. All physicians s
Ключевые слова:
pigmentary disorders; vitiligo
adolescent; adult; age; aged; alopecia areata; Article; body surface; child; clinical practice; disease activity; disease association; eyelid; hair color; hand; human; lupus erythematosus; major clinical study; onset age; patient-reported outcome; pernicious anemia; rheumatoid arthritis; skin color; socioeconomics; vitiligo; economics; female; genetics; health service; Internet; male; middle aged; patient attitude; severity of illness index; skin pigmentation; statistics and numerical data; treatment outcome; very elderly; vitiligo; young adult; Adolescent; Adult; Age of Onset; Aged; Aged, 80 and over; Child; Female; Health Services Needs and Demand; Humans; Internet; Male; Middle Aged; Patient Acceptance of Health Care; Patient Reported Outcome Measures; Severity of Illness Index; Skin Pigmentation; Treatment Outcome; Vitiligo; Young Adult
Язык текста: Английский
ISSN: 1529-8019
Valle Y.
Korobko I.
Sigova J.
Borodina M.
Lomonosov K. M. Konstantin Mikhaylovich 1965-
França K.
Lotti T. Torello 1953-
Валле Y.
Коробко И.
Сигова Й.
Бородина М.
Ломоносов К. М. Константин Михайлович 1965-
Франçа К.
Лотти Т. Торелло 1953-
Patient-reported outcomes: A 5-year long study reveals previously unreported therapeutic, demographic, socio-economic, and other correlations in vitiligo
Patient-reported outcomes: A 5-year long study reveals previously unreported therapeutic, demographic, socio-economic, and other correlations in...
Текст визуальный непосредственный
Dermatologic Therapy
John Wiley & Sons, Inc.
Vol.31, Issue5 Num.e12620
2018
Статья
pigmentary disorders vitiligo
adolescent adult age aged alopecia areata Article body surface child clinical practice disease activity disease association eyelid hair color hand human lupus erythematosus major clinical study onset age patient-reported outcome pernicious anemia rheumatoid arthritis skin color socioeconomics vitiligo economics female genetics health service Internet male middle aged patient attitude severity of illness index skin pigmentation statistics and numerical data treatment outcome very elderly vitiligo young adult Adolescent Adult Age of Onset Aged Aged, 80 and over Child Female Health Services Needs and Demand Humans Internet Male Middle Aged Patient Acceptance of Health Care Patient Reported Outcome Measures Severity of Illness Index Skin Pigmentation Treatment Outcome Vitiligo Young Adult
Vitiligo is a non-lethal, non-communicable, immune-mediated, and generally progressive skin disease, with poorly understood etiopathogenesis and weak evidence base. The aim of the study is to contribute to the scant research on the patient-reported outcomes in vitiligo, and to examine the presence of associations between various inputs for possible use in clinical practice. The study was designed as a web-based questionnaire with 40 inputs across seven dimensions. The questions include demographics, skin type, eye and natural hair color, age of respondent and age of onset, possible triggers, disease extent, localization, progression and activity, the efficacy of most common treatment modalities, medication side-effects, heredity and diseases among parents, and out-of-pocket expenses for treatments to date. The analysis presented with this work contributes to the discussion about the relation between therapies, socio-economic factors, and treatment outcomes in vitiligo. All physicians s